What is Patient Engagement?
Patient Engagement
In traditional research activities including clinical trials, patients primarily contribute to the research as research participants. This means they are the subjects of the trial or research activity, by receiving the treatment or procedure being studied. This role is vital, as research would not be possible without their participation. However, our team believes that patient engagement can and should go beyond that. We collaborate with patients throughout the research process.
The Gardener’s Grove Team supports the Strategy for Patient-Oriented Research, which provides that “[p]atient-oriented research is about engaging patients, their caregivers, and families as partners in the research process. This engagement helps to ensure that studies focus on patient-identified priorities, which ultimately leads to better patient outcomes.”
Our team has conducted a number of trials that encourage patients to partner with us beyond the traditional participant role. In these trials, we invite patients to meaningful collaboration in the research process. We request they participate from start to finish. Thus, they support the initial research project concept build and design, development of research questions, implementation of interventions, and participate in certain parts of the research projects and final analysis.
We agree with the Canadian Institutes of Health Research (CIHR). “This type of participation helps to ensure that the research being conducted is relevant and valuable to the patients that it affects.”
To learn more about patient partners, the Strategy for Patient-Oriented Research (“SPOR”) and the SPOR Framework, please visit the CIHR Patient Engagement page.